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2004 Conference Focus:
Genetics, Bioethics and the Common Good
Conference Sponsored by Sisters of Charity of the Incarnate Word, University of the Incarnate Word, CHRISTUS Health, Oblate School of Theology and UTHSCSA Hispanic Center of Excellence
As the possibility for profound change in human genetic history races closer, the sponsors of this annual conference hope to facilitate open and informed dialogue about the ethical, moral and social implications resulting from the multiplicity of human genetic research developments. Major bioethical questions are on the horizon in this post-modern global culture: arguments over stem cell research, uncertainty about genetic engineering for human enhancement, doubt about access for all to the results of genetic advances and many more. There is, therefore, an urgent need by professional nurses and other health care professionals, ethicists, theologians, teachers and researchers for vigorous exploration of and participation in shaping a new worldview about the ethics, morality and justice of the promises coming from genomic discoveries and applications.
In this year’s conference participants will:
The School of Nursing and Health Professions at the University of the Incarnate Word is an approved provider of continuing nursing education by the Texas Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. This activity meets Type I criteria for mandatory continuing education requirements toward relicensure as established by the Board of Nurse Examiners for the State of Texas.
The attendee may earn up to 5.4 contact hours for attendance at both Friday and Saturday sessions OR 1.5 for Keynote Address and 3.9 contact hours for Saturday Plenary Address and Special Interest Sessions. Attendees must not be more than ten minutes late for a session and must stay for the entire session. Certificates will be available at the end of each day.
CEU’s are available for Social Workers. A Certificate of Attendance is available.
Maura A. Ryan, Ph.D.
Associate Provost, Associate Professor of Christian Ethics
Fellow of the Joan B. Kroc Institute for International Peace Studies. University of Notre Dame, Indiana. maura.a.ryan.61@nd.edu
Dr. Maura Ryan serves as the Associate Provost of the University of Notre Dame. She is also Associate Professor of Christian Ethics and a Fellow of the Joan B. Kroc Institute for International Peace Studies at Notre Dame. She serves as a member of the Executive and Advisory Committee for the Program in Catholic Social Tradition and instructor in the Satellite Theology Education Program, an online program extending theological education to pastoral ministers across the country.
After completing her undergraduate degree at St. Bonaventure University, she earned an M.A. at Boston College and a Master of Philosophy and a Ph.D. at Yale University. Her primary interests are in bioethics and health policy, feminist ethics, and fundamental moral theology. She co-edited with Todd David Whitmore the Challenge of Global Stewardship: Roman Catholic Responses and published Ethics and Economics of Assisted Reproduction: The Cost ofLonging in 2001. She has articles published in the HastingsCenter Report, The Journal ofPhilosophy and Medicine and Ethics and Behavior.
Ryan served on the Board of Directors for the Society of Christian Ethics and the editorial board of the Religious Studies Review and Ethics and Behavior. She serves on the St. Joseph County Healthcare Advisory Consortium and the ethics committee for Hospice of St. Joseph County. Currently she is working on the challenge of assisted suicide for feminist ethics.
Rick Guidotti.
Director of Positive Exposure.
Internationally renowned fashion photographer. Travels internationally to interview and photograph people with albinism and other genetic conditions.
RickGNYC@aol.com
Special guest presenter, Rick Guidotti, a former international fashion photographer, is Director of Positive Exposure, a not-for-profit organization using creative programs to raise consciousness about the stigma associated with genetic differences and to demonstrate through photos and video interviews the beauty underlying genetic variation.
Mr. Guidotti began his academic career in architecture and engineering at Drexel University before transferring to New York’s School of Visual Arts. After completing his education in photography and filmmaking, Guidotti established a studio in Manhattan where his clients included L’Oreal, Revlon, Harper’s Bazaar, NY Style and Life magazine. In 1998, Guidotti underwent a major career change when he encountered a young girl with albinism. The more he researched the topic, the more he was drawn to what he calls, “a celebration of difference,” a new beauty standard.
Guidotti’s first photographic exhibit on albinism called, “Redefining Beauty,” may be seen in Life, June 1998 issue. He has exhibited widely, including at the Smithsonian as part of “The People’s Genome Celebration: Exploring our Shared Experience.” In response to this exhibit, Dr. Francis Collins wrote: “Your photographs are stunning and the stories behind them are powerful. You conveyed profound messages about stigmatization, self-acceptance, and the impact of a genetic condition on people’s lives. The enthusiasm you bring to POSITIVE EXPOSURE is infectious….”
| 6:00 p.m. | Registration |
| Book Display by Viva | |
| Conference Opening | |
| 7:00 p.m. | Welcome and Introductions Invocation Introduction of Keynote Speaker Keynote Address: “Whose Holy Grail? Justice and Health Care in a Genetic Age.” Question and Answer Session. Evaluation. Reception in Marian Hall Lobby Photo Exhibit: Rick Guidotti |
| 8:00 a.m. | Registration. Coffee available, Marian Hall Foyer Book Display by Viva |
| 8:30 a.m. | Invocation Introduction of Speaker Plenary Session Question and Answer session. Evaluation.
|
| 9:45 a.m. | Break |
| 10:00 a.m. | Concurrent Special Interest Sessions |
| 11:00 a.m. | Break |
| 11:15 a.m. | Concurrent Special Interest Sessions repeated |
| 12:15 p.m. | Evaluation and adjournment |
Each session will be presented twice.
CASE STUDIES IN APPLICATION OF BIOETHICAL PRINCIPLES
Presenter: Dr. Maura Ryan. Associate Provost and Associate Professor of Christian Ethics, Fellow of Joan B. Kroc Institute for International Peace Studies. University of Notre Dame. Specializes in bioethics and health policy.
Objective: To discuss application of ethical principles to the decision –
making process when medical, social and economic values compete in the
context of genetic technologies.
Location: J.E. and L.E. Mabee Library Auditorium
POSITIVE EXPOSURE: CONTINUING THE CONVERSATION
Presenter: Rick Guidotti. Program Director of Positive Exposure, an organization which uses “innovative programs to challenge the stigma associated with difference and celebrates the richness of genetic variation with positive images and powerful life stories” (www.positiveexposure.org)
Specialist in portraiture and fashion photography.
“Christine”—Sample of Guidotti’s portraits.
Objective: To discuss how Positive Exposure holds up a mirror that reflects society’s injustices and the need to develop practical methods that demonstrate how personal transformation and social transformation are intertwined.
Location: Marian Hall Ballroom
FACING A GENETIC DISORDER DILEMMA: INFLUENCE OF MEXICAN-AMERICAN CULTURE
Presenter: Maricela Aguilar, MSN, RN. Specializes in cultural implications in delivery of health services, genetic issues in areas of religion, spirituality, ethics and informed consent.
Objective: To describe Mexican-American culture’s influence on family health, discuss the impact of a genetic disorder on such a family and possible interventions for ethical decision-making.
Location: Joyce Building #126
CAN GENES TELL US ABOUT THE NATURE OF GOOD AND EVIL?
Presenters: Paul Lewis, Ph.D., Assistant Professor of Philosophy, University of the Incarnate Word. Specializes in philosophy of technology, philosophy of history, Marxism and existentialism.
Richard Peigler, Ph.D., Associate Professor of Biology, University of the Incarnate Word. Specializes in evolution, entomology, and biosystematics.
Objective: To examine the impact of developments in genetic science and technology on good and evil.
Location: J.E. and L.E. Mabee Library Special Collections Room, 2nd floor